NAVIGATION

Patient Stories

Dear friends, are you or the people around you experiencing hardship and pain in a rehabilitation process? Is your rehabilitation story one of success and joy, or is it not so full of happiness and delight? Either way, we hope you can write to us and share with us your real experiences, so that we can help encourage more people who need rehabilitation to seek the very best care.

Please send us your rehabilitation story to us via email. You will have the chance to win RMB 500 in coupons for free rehabilitation therapy or consultations at BJURH. Please send your e-mails tobju.rehab@ufh.com.cn.Thank you for your participation and have a wonderful future.

Letter of Appreciation

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(中文) 奏响美好生活的新乐章

(中文)

张先生是一名优秀的作曲家和指挥家,大大小小的音乐会都可以看到他的优雅身影,闲暇时候参加各种慈善义演和音乐家教学。然而突如其来的一场车祸改变了他的人生轨迹–胸四节段的脊髓损伤导致他无法再指挥庞大的交响乐团,华彩的生活乐章似乎离他渐渐远去。​ ​​​车祸后听到最多的就是“能够在这场意外中存活下来就是不幸中的万幸了”。张先生说:我太太安慰我说不用担心,她会照顾我一辈子,我非常感动和感慨,这种无助和看到亲人的幸苦,有时真是痛苦不堪,这不是我想要的。照顾自己竟成了一种奢望!”​ ​​​

在朋友的推荐下,张先生来到北京和睦家康复医院。从躺在床上“虚度光阴”到可以自己移动轮椅行进100米开外,从处处需要家人照顾到自己可以用双臂支撑起身体自如地坐到床、轮椅、马桶之间的转移。一点一滴的进步给了张先生生活的曙光,他开始更加积极的加入和配合康复训练了,有信心用轮椅逐步照顾自己的生活,张先生总是跟朋友开玩笑说,和睦家康复医院把我的剩余价值找出来了,这给家人减轻好多负担, 和睦家的康复团队就是我的梦之队,帮我筑梦,帮我实现原来不敢做的梦。​​ ​

随着经济的发展,医疗水平的提高,脊髓损伤病患和伤后生成率的增加,像张先生这样因为交通事故导致脊髓损伤的情况,更重要的工作是如何康复,如何回归,如何找到新的目标,如何可以实现不同的梦想。​​个性划的康复方案不仅可以减轻患者身体和心理上承受的莫大痛苦,也给家庭和社会带来希望和价值。​ ​​国际物理与康复学会主席、和睦家康复医院首席医疗官励建安教授介绍说;“脊髓损伤患者有70%到80%是可以恢复工作的。

事实上,脊髓损伤大部分是不能够全部恢复的,但是80%以上的脊髓损伤患者如果进一步经过合理的个性化的康复训练,可以100%生活自理,绝大大部分还可以恢复并获得一定的工作能力,除了减轻个人和家庭的负担,还可以创造更大的社会价值。从这个角度说,脊髓损伤的康复是对自己、对家庭、对社会都有益的一项投资。”​​ ​ ​爱,不只是照顾和陪伴,而是找到优秀的康复伙伴,活得有尊严的自主生活能力,找回伤后生命新的旋律与乐章。

(中文) 一封来至英国的感谢信

(中文)

患者的肯定永远是医护人员最大的安慰,以患者和家庭为中心的康复服务让患者在医院也能感受到家一样的温暖。收到去年我们患者朋友的来信,感动的同时也让康复医院的同事们对康复的事业更加热爱,充满了动力和信心。在此与大家分享这份感动。

我们也非常感谢Reynolds先生的积极配合,并愿意将他的照片和个人的感受分享给其他朋友,在这里我们祝福他,一切都好。

Reynolds先生的来信

“结束了在南京的公差,我迫不及待的想回到英国与家人团聚。

然而,命运似乎喜欢在我们毫无防备的时候,突然向我们发出挑战。在北京南站我从楼梯不慎滑到,导致双膝严重受伤。救护人员把我带上救护车。还好我听说过北京有一家为外国人开设的医院,救护人员自然的把我带到了和睦家医院。

骨科大夫娴熟有自信的为我进行了手术,手术非常成功。术后两天顺利的转入集团新开业不久的康复医院进行系列的术后康复治疗。我很高兴自己选择了这家医院,尤其是手术后开始了康复治疗。

康复医院所有医务人员都很专业,设施也很先进,训练完后躺在病床上想家的时候想虽然离家很远,在这里让我非常有安全感,有家的温暖。我和我的物理治疗师,他 在国外接受过专业训练,我们俩建立了合作伙伴一样的关系,他还不断的表扬我,每天交流起来很开心。主治医生和护士更是对我照顾有加。积极的康复治疗我恢复 的很快,短暂的治疗过程中我与我的新朋友有同样的感觉,她也来自英国,在中国工作,更巧的是与我的女儿住在同一城市,她说快出院的了有点依依不舍她的治疗 团队。

现在我已经回到我英国家里一段时间了,夏天休假,把我在北京的感受和感谢发给您们,表达我深深的谢意,“我在北京和睦家与和睦家康复医院都得到很好的治疗和帮助,这里是中国最好的医院之一。经过这段日子,我恢复了双膝的功能,并得到了在家一样的爱与关怀。谢谢你们!

(中文) 康复旅途爱的陪伴

(中文)

仲夏的傍晚,阳光已经退去了一天的炙热,轻柔地洒在和睦家康复医院宁静而清新的小花园里,结束了一天康复训练和治疗的李先生坐在轮椅上很放松的样子,对面是每天陪伴的太太,已经好多天都这样了,被细心的小护士们发现这是属于他们的小角落,是一天中的“读报和聆听时间”。

已 经年过花甲的李先生来自于遥远的天山脚下,曾经是一名退伍军人,叱诧风云,用我们治疗师的话来讲是可是相当的帅气。前不久脑卒中后偏瘫伴失语,稳定后家人 决定北京和睦家康复医院进行进一步的康复治疗,很快李先生可以自己站立和缓慢新走了,近一个月的治疗现在看来语言成为需要更多时间和训练来恢复的部分 了……

脑卒中失语症是脑血管意外后的常见并发症,带来的言语障碍会在一定程度上极大地影响患者的社交能力和社会生活。为使患者说话、理解、阅读、计算、写字等能力部分或全部恢复,特殊的功能康复训练、心里调适和家庭的支持是非常重要的。

在 和睦家康复医院,由医生、治疗师、康复护士、专业营养师、资深药师、心理咨询师等专业人员组成的多学科康复团队为李先生制定了有针对性的个性化康复方案, 除此之外,为了确保李先生回到家还能有长期的维持康复成果的训练,后期康复的内容中家属成为重要的因素之一。李太太每天的陪伴有增加了一项工作之后每天伴 着晨曦沐浴着晚霞,你都可以在和睦家康复医院的小花园里找到他们的身影,听到李太太用维吾尔族的语言耐心地为先生解读新闻和新鲜事。在金色的余晖里,两位 白发苍苍的老人互相依偎着,拉着手,脸上洋溢着幸福与温情的微笑……此情此景也同样深深的感染着和睦家康复医院里每一个人。

“非常感谢和睦家康复医院,在这里我们不仅得到了尊重和关爱,得到了最好的康复治疗,我也在他们的帮助下学会了正确看待我先生的状况,学会了陪伴我先生和加入到日常的康复活动中来。他现在的身体状况正在一天天好转,我们非常有信心。感谢和睦家康复团队的每一个人。”

—-北京和睦家康复医院 双盲同事 朱学元 撰稿

(中文) 让运动生命从心开始—"铁人“杰克的康复故事

(中文)

突发心肌梗死让他几乎看不到希望

“胡大夫,谢谢您,我感觉好一些了。”

“非常好,如果你能够调整好心态效果会更好。”

“是的,我下周就要回德国了,您有什么建议吗?”

“我们还需要做一些检查,你也需要进一步改善饮食,保持良好的生活方式,运动的时候最好有仪器的监测,仪器可以告诉你能够承受多大强度的运动。”

……

在 和睦家康复医院明亮整洁的诊室里,著名的心血管专家胡大一教授和他的团队正在和一位俊朗的德国人用流利的英文亲切交谈着,他叫杰克,今年47岁,在这个中 国人看起来已经接近半百的年龄,他却看起来像正值青春的小伙子一样充满着活力,又不失严谨而稳重,脸上经常浮现一丝坚定而温和的微笑。

很难想象如此阳光开朗的性格几个月前却沉浸在挥之不去的压抑和痛苦中。

杰 克酷爱运动,尤其是高强度、高挑战、高耐力的”铁人三项”运动,虽然不是职业“铁人三项”的运动员,但是他对这个运动的热爱一点都不比职业选手差。然而在 一次运动中,意外发生了,突发急性心肌梗死导致杰克心脏骤停。幸运的是,紧急关头,医务人员抢救及时,杰克脱离了生命的危险。但对于一个酷爱运动,视运动 为生命的人来说,这是一个天大的噩耗,在大多数人眼里他根本不可能再从事诸如“铁人三项”这么大强度的运动了,他必须放弃自己的运动爱好。

心脏康复助他重返运动赛场

胡 大一教授团队为杰克做了细致的检查,并制定了适合他的个性化康复计划,为他开出了包括运动、营养、心理调适、药物在内的四大处方,在专业、高水平康复治疗 师、心理咨询师、营养师、药剂师组成的康复团队和护理团队的共同努力下,杰克的血压和心电图检查几乎恢复到正常水平,心慌的状况和睡眠都有了很大的改善, 重新找回了健康的生活方式,身体状况和心里状态也一天比一天好转起来,并且可以在仪器的监护下跑步、游泳、爬山……

“杰克的执行力非常好, 和我们都建立了非常好的伙伴关系。在治疗的过程中我们会不断地给他加油,既要鼓励他,同时有一些东西也要和他一起去做,因为有时候他觉得自己做不到,和他 一起做,他会感觉自己也能够做好。”治疗师小谭在谈起杰克的时候就像谈起多年朝夕相处的老朋友,对他的身体状况、个性特点乃至生活习惯都了如指掌,而他们 相伴的时间还不到四个月。

“心脏病的完整治疗不只是药物和支架,还需要通过一系列的心脏康复治疗,”胡大一教授指出,“系统的心脏康复需要 及时与医生沟通调整用药、科学的运动评估与监测、量身订做的均衡、营养饮食、有效的心理情绪调试以及个性化的戒烟方案等多种干预措施,使患者改善生活质 量,回归正常社会生活,并预防心血管事件的再次发生”

如今,杰克已经回到了他的工作岗位,回到了熟悉而宁静的生活,但是他依然坚持按时来到 康复医院做心肺运动训练。“非常感谢和睦家医疗,和他们在一起,我可以跟随我的目标,跟随自己的决定!”杰克深情地说,“今年9月份国际铁人三项比赛会在 北京举行,我非常希望到时候能够参加这个比赛,我知道这是一个很大的挑战,但是在胡大夫心脏康复团队的帮助下,我正在一步步接近我的目标……“

*为保护患者隐私,文中未使用患者真实姓名。

(中文) 康复“小天使”的故事

(中文)

让康复医疗托起你未来的希望

—讲述康复“小天使”的故事

她 叫小慧,出生在江苏一个宁静的小乡村,和其他两岁半的小朋友一样是父母的掌上明珠,是乡亲邻里眼中的快乐的小天使,是对生活充满着梦想与希望的“小小画 家”。然而,2013年5月的一天,突如其来的车祸胸12阶段的脊髓损伤让小慧双腿失去行走的能力,大小便都没法管理。简单的日子一下子复杂起来,活泼开 朗的她渐渐的少言寡语了,并不富裕的三口之家为小朋友的未来开始到处奔波寻找最好的康复治疗。

在2014年这个充满希望的春天,小慧在励建安教授和热心病友的帮助下,来到了北京和睦家康复医院开始了崭新的康复之路。

在 温暖明亮的北京和睦家康复医院儿童病房,映入眼帘的是如满天繁星点点闪烁的淡蓝色的天花板,淡黄色的墙壁和客服部门刚刚送来的绽放的鲜花,都散发着春的气 息和浓浓的暖意。小慧刚刚做完物理康复训练,趴在靠近窗边的沙发上摆弄着康复医院热心的“大姐姐们”和病友们送来的玩具和画册。在她那圆圆的小脸上时常带 着甜甜的微笑,忽闪忽闪的大眼睛里透漏着纯真与聪慧的光芒……

“小慧是一个非常懂事要强的小孩子,如果看到我因为她而担心落泪,她总会努力用小胳膊支撑起自己使劲使劲地去锻炼,招呼我:妈妈妈妈,你看你看,我的屁股能撅得这么高了!”小慧妈妈含着眼泪这样告诉我,她在用自己的行动告诉妈妈“不要担心,我在努力”。

“她 什么事都想自己去做。”因为需要帮助小慧排除残余的尿量,一开始医生们想到了让妈妈帮忙把尿,建立刺激反射。但是小慧一直很抗拒妈妈的帮助,效果并不是很 好。后来细心的医疗团队根据小慧的喜好,为她购置了色彩鲜艳的、很像小鸭子形状,还会唱歌的小尿桶,帮助她建立刺激反射,终于让小慧可以自己小便了,这对 脊髓损伤患者未来的生活是一个革命性的改变。

“小慧的依从性很好,我们也在整个的训练过程中想方设法诱导着,把我们的治疗融入到游戏当中, 去让她感受到治疗的效果。”儿童康复专家宋小燕主任说。“同时,我们在治疗的过程中不单纯只关注到孩子,我们也会关注到家人,家人的支持、家人的心理辅 导,以及让家人怎么样去配合我们给这个孩子做治疗,这样会达到更好的康复效果。” 于是让妈妈控制爱心的工作开始了,妈妈的爱和主动的帮助有时候比训练小朋友还难,“可以理解但不能接”, 不断的开会,不断的提醒和解释,小慧的训练越来越好,还开始与大家调皮捣蛋了。

在和睦家医疗团队专业、悉心的呵护下,小慧的笑容也比以前多了许多,一天比一天开朗起来。

出院,是院外康复的开始,医生和治疗师开始反复的从医疗到生活,到成长,很细致的嘱咐爸爸妈妈哪些应该做,而哪些不要做,何时需要再看医生,如何适当的训练。。。。。。为保持住康复效果,为保障院外的生活质量,必须精致到每一个方面,每一个细节。

“我们将与小慧和她的父母一起确保她的将来可以健康成长, 希望她能获得身心的健康,在轮椅上,一样能活出自己的精彩,一样走世界!”

(中文) 和睦家康复助力马布里

(中文)

马布里膝盖成北京X因素 为冠军他能放弃一切

 

CBA职业联赛 体坛周报  2014-03-17

记者陈雄北京报道

用最艰难的方式,取得最完美的结果,对于北京男篮而言,能在CBA半决赛中战胜广东男篮,标志着他们在争冠道路上走出了重要一步。然而,战胜广东并不等同于夺冠,新疆队早以逸待劳恭候多时,CBA新科外援MVP哈德森绝不会像水货艾维一般好欺负。

马布里还能坚持多久,马布里的膝盖还能坚持多久,几乎将成为判定总决赛走势的最大X因素。“我的目标从未修改,为了赢得冠军,我愿意付出所有。”马布里说。正因这样的态度,马布里在季后赛期间反复抽取膝盖积液,不惜以损耗运动生命的代价来换取短期内的良好状态。

得益于CBA赛程安排,北京虽苦战5场过关,但在总决赛前却也有长达5天的休息,3月14日回京后,马布里紧锣密鼓地安排了康复日程,于翌日前往北京和睦家康复医院作进一步诊疗,他的左膝确诊为运动过量引起肿胀,关节内侧有并发性疼痛。在通过超声按摩等治疗手段对膝盖加以消肿后,马布里特地在恒温水池里进行加练:因水池浮力能令膝盖部分所受的压力大幅降低,相关的牵引和放松训练也得以顺利进行。为冠军愿意牺牲所有,马布里绝不只是说说而已。

Le Le's Story

Summer 2012 was a season full of despair and agony for the family of a little child named “Le Le.”

One evening, Le Le was playing with his friends in the village after dinner as he normally would on a summer evening, when something occurred that suddenly broke the picturesque serenity of this happy childhood. Le Le was viciously mauled by two feral dogs wondering the village. The child let out terrible wails, having experienced a pain that will forever be etched in memory. When it was all over, there were deep wounds all over Le Le’s body and he was critically injured.

After being rushed to the local public hospital where he was stabilized and eventually brought out of danger, Le Le began dealing with the consequences of the incident.

Le Le’s parents were told by the local hospital physicians that Le Le’s left arm would suffer a lifetime of dysfunction as a result of severe injury to the brachial plexus, a network of nerves that conducts signals from the spinal cord to the shoulder, arm and hand. At the time, little Le Le was only 4 years old. Should he be passively resigned to such a fate that would last a lifetime?

Luck opportunely arrived for this unlucky family in the form of the United Foundation for Children’s Health (UFCH), a non-profit philanthropical organization that brought Le Le to Beijing United Family Rehabilitation Hospital (BJURH) for world-class treatment at no cost to the family, using funds donated to the organization to assist people like Le Le. At BJURH, Le Le had access to the very best rehabilitative therapies and clinicians in China.

Upon arriving in Beijing, Le Le was seriously restricted in movement and activity in the left shoulder, especially the joint area. The injury also severely restricted movement in the forearm and especially in his wrist flexion and extension. Le Le was not able to move his wrists easily, especially rotating the wrist, as you would when making a muscle and then flexing your wrist in then out.

Additionally, Le Le was unable to easily stretch and separate the fingers on his left hand, with fingers unable to open. As well, the deep wound to his left hip made flexing and extending his hip and leg area very difficult. Such injuries not only are hard to deal with, but over time, also would likely have all kinds of unfortunate effects on his growth and development skills, deeply harming all kinds of growth processes.

For example, Le Le’s walking style, running ability, and jumping abilities were all limited. Le Le would seemingly never be able to play with the other children happily chasing the sun like he had so often done before.

Serious limitations in Le Le’s upper body meant that Le Le’s parents needed to take special care of Le Le, greatly changing their lifestyle and significantly increasing time spent in taking care of him. For instance, simple things like getting dressed became a major challenge for this four-year old that had very little ability to care for himself.

Continuing on this way with no rehabilitation treatment, Le Le would face a hard future with numerous negative and far-reaching implications for his schooling, his social interactions with others, and in his overall life capabilities. Such things can sink the positive good will and heart of a young child.

No doubt, a child facing such stresses is likely to suffer in their psychological health.  As Le Le had multiple surgeries on tendons with many trips in and out of the operating room, his behavior began to change.

Every time when stitches were taken out and bandages removed post surgery, Le Le could see the deformities and scars that remained on his hands and arms. The child began typical avoidance behavior, having difficulty making eye contact or focusing attention, while not wishing to communicate with unfamiliar adults or even children his own age.

Upon beginning treatment at Beijing United Family Rehabilitation Hospital (BJURH) this year, Le Le began a comprehensive hand function rehabilitation program including a pre-school intervention system to improve pre-school learning and communications skills. After his final finger tendon surgery, Le Le was successfully admitted to a Beijing pre-school with other children. So how is the 5 year old Le Le doing now?Le Le really likes to run, jump, play, and swim with his new friends, his Beijing United Family Hospital uncles and aunties that are taking care of him. Well, the change has made all the difference in the world to Le Le. Nearly the full range of motion has returned to his left shoulder, his walk is basically normal, with full balance and a return to normal for many other functions. There are still some deficiencies in his fine motor skills in his fingers, but now little Le Le can dress by himself, fasten a button, and enjoys making some simple Origami paper shapes with his hands.

Apart from an incredible improvement in physical capability, Le Le’s rehabilitation programs have helped him with his psychological and behavioral development.

This once sad child can now chase sunlight again, enjoying himself by playing happily and growing up together with his fellow classmates and friends. What is more important in the world than a child growing up happy?

At Beijing United Family Rehabilitation Hospital, our scope of treatment options is unlimited. We would never stop at just the basics, and we keep moving forward on Le Le’s behalf, working with him to make sure he has a better future. We also hope to bring the same spirit to help even more children like Le Le, helping them get the very best out of life, providing a future full of hope.